Welcome
This is the story of Emma’s journey with lupus and our faith to fight it.
Lupus is a chronic (long-term) autoimmune disease that can cause inflammation and pain in any part of Emma’s body. Her immune system — which usually fights infections — attacks healthy tissue instead.
Here’s a bit of Emma’s journey so far.
2023
3 years old
Emma was hospitalized for severe anemia due to Evans Syndrome, where her body attacked her red blood cells and platelets. She received an official diagnosis of SLE and we began treatment.
2022
18 months – 2 years old
Typical treatments for Sweet’s were not effective for Emma. We monitored closely with weekly labs due to elevated LFTs.
2021
5 months – 1 year old
Emma developed red nodules on her skin that were biopsied and diagnosed as Sweet’s Syndrome, a rare condition alerting the body of an underlying condition. We began testing for lupus.
There is no cure. But with God, there is always hope.
Ways to help
Pray
Lupus is hard. God is good.
We know miraculous healing is rare. We also know it’s possible. So we pray for Emma’s full healing, daily.
We also pray for her brilliant doctors, upcoming procedures, medical breakthroughs, and protection from the harmful side effects of her treatment.
Read our journal for specific prayer requests.
Give
They saved her life, but there’s more to do.
Help Emma’s rheumatology team at Seattle Children’s Hospital find a cure for lupus by funding their research.
Grief, loneliness, and our drive to carry on.
We made a short film about the stages of grief we cycle through as we’ve watched Emma’s disease unfold.
May this familiar story of heartbreak bring you hope.
I love you, God — you make me strong.
—PSALM 18v1
